Frequently Asked Questions
Who is Elliana?
Elliana Rose Campbell captured the hearts of millions when her mom shared her journey with Epidermolysis Bullosa on TikTok (@ellianas_journey)
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Elliana, or "Ellie", was born May 23, 2024, and was quickly diagnosed with Junctional Epidermolysis Bullosa (JEB). Through sharing her videos online, Ellie's mom Hannah gained almost 750,000 followers who were captivated by Ellie's eyes. Ellie lost her battle to EB on April 7, 2025, at only 10 months old. Her brave battle has caused a wave of awareness and activism to finding a cure for EB.
Where do the proceeds go?
All proceeds go directly to Heroes for Hallie Grace Inc. They will split the proceeds the following way:
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50% of proceeds will go towards their memorial box fund, which supports families that have lost a loved one to EB with free memorial boxes, resources in their area, and ongoing support.
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50% of proceeds will go directly to debra.org, via the Elliana's Aunties fundraiser.
How long will it take to get my order?
We use Printify for order fulfillment. Shipping information will be given at checkout. Orders usually ship within 1 business day, but we do not have control over production or shipping delays.
What is Epidermolysis Bullosa?
Epidermolysis Bullosa, or EB, is nicknamed "The Worst Disease You've Never Heard Of." It is a group of rare disorders caused by a mutation in one of 18 genes. There are several types and subtypes of EB, including Junctional EB (JEB), which most babies don't survive past their first birthday.
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Epidermolysis Bullosa causes the skin to be as fragile as a butterfly wing, which is why butterflies are frequently used to raise awareness for EB. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. In some cases, those tears and blisters never heal.
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To learn more about Epidermolysis Bullosa, visit debra.org or ebresearch.org
What is the Refund Policy?
Because all proceeds are donated to charity, we do not offer refunds. However, if there's an issue with an order, please reach out to us at ellianasarmy@gmail.com.