Elliana Rose Memorial Bench

In Loving Memory of Elliana Rose

Honoring a Brave Little Butterfly & Raising Awareness for EB

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On April 7, 2025, the world lost a beautiful light — 10-month-old Elliana Rose, who bravely fought a rare and painful condition called Epidermolysis Bullosa (EB). Though her time with us was short, her impact is everlasting.

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In honor of Elliana's life and in support of those still fighting this devastating disease, we are raising funds to install a memorial bench — a peaceful, beautiful space for Elliana's family and community to visit, reflect, and remember her sweet spirit. The bench will also feature a plaque raising awareness for EB and support for the EB Research Partnership, with the hope of moving one step closer to a cure. The bench will be located on the waterfront in Bangor, Maine - Elliana's hometown.

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Our goal is to have the bench installed before what would have been Elliana's first birthday — May 23, 2025.

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This is more than a bench. It’s a symbol of love, remembrance, and hope — for Elliana and for every child affected by EB.

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Will you help us honor Elliana’s legacy? Any contribution, no matter the size, will bring us closer to our goal and make a lasting impact in both memory and mission.🦋 

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Thank you for helping us keep Elliana’s light shining.